Take part in research and evaluation
Our research team regularly conducts confidential surveys and evaluations with the families who access our services. Sometimes they are asked by colleagues in the cancer research sector to share their call for participants in studies or projects.
External studies seeking participants
If you have had cancer and were aged 0-18 at the time, or have cared for a child or sibling with cancer, you might be interested in taking part in a research study. Your participation could help improve support for others in the future.
Supporting parents who are caring for children with recent injury or medical conditions
The research is being conducted by Rachmania Wardhani (Student Investigator, PhD (Clinical Psych) Candidate)
Survey exploring the relationship experiences of families and
adolescents and young adults diagnosed with sarcoma.
The research is being conducted by doctorate student Maureen Tan, supervised by A/Prof
Moira O’Connor and A/Prof Georgia Halkett. from the School of Population Health, Curtin
University
Wellbeing and experiences of siblings of people with cancer in regional and remote Australia
The research is being conducted by Samuel Antonio (under the supervision of Dr Chloe Maxwell-Smith) at Curtin University to examine the experiences, supports, and unmet needs of siblings of people with cancer in regional and remote Australia.
Assessment to Action: Pioneering needs-based assessment in paediatric oncology
The research is being conducted Dr Jamie Bryant at the University of Newcastle to understand the unmet needs of children aged 8–14 with cancer and their parents.
iSTEPPP-ANZ – Implementing the Standards Together: Engaging Parents and Providers in Psychosocial Care
The research is being conducted by A/Prof Maria McCarthy at Murdoch Children’s Research Institute to examine what types of psychosocial care families received at their cancer centres, and which ones were most important to them.
When we list research not being conducted by Redkite, we are not recommending that you take part. We have checks in place to make sure that the research will be conducted ethically but you should make your own decision whether or not you would like to be involved.
We would also like you to know that:
- You should not feel obliged to participate in any of the studies listed here
- Your relationship with Redkite won’t be affected by whether or not you take part
- If you would like to participate, you should consider informing your doctor or health professional
- If you do decide to take part, you have the right to withdraw from the research at any time, whichever study you take part in
- Redkite has not and would never pass your details on to the researchers listed here, or any other external researchers, without your permission
