Take part in research and evaluation
Take part in research and evaluation
Our research team regularly conducts confidential surveys and evaluations with the families who access our services. Sometimes they are asked by colleagues in the cancer research sector to share their call for participants in studies or projects.
External studies seeking participants
If you have had cancer and were aged 0-18 at the time, or have cared for a child or sibling with cancer, you might be interested in taking part in a research study. Your participation could help improve support for others in the future.
Survey to check comprehension – paediatric cancer patients and care-givers
The research is being conducted by Alison Windsor, Australian English Consultant from POW Translations for RWS Life Sciences, and aims to check if the wording in a translated questionnaire is clear and appropriate for people who use Australian English.
Survey exploring the relationship experiences of families and
adolescents and young adults diagnosed with sarcoma.
The research is being conducted by doctorate student Maureen Tan, supervised by A/Prof
Moira O’Connor and A/Prof Georgia Halkett. from the School of Population Health, Curtin
University
Fatigue and physical activity from children with cancer and their parents’ perspectives
The purpose of this University of Sydney study is to explore children’s and their parents’ thoughts and experiences of fatigue/tiredness – as well as how tiredness might change physical activity – during and after cancer treatment.
Understanding needs following a child’s cancer
The Deakin University study aims to understand the experiences and unmet needs of children with cancer and their parents both during and beyond treatment.
Workplace Support for Parental Grief
This study conducted by the School of Psychology, University of Queensland, aims to understand the workplace experiences of bereaved workers after the loss of a child.
Symptoms and Side Effects
The research is being conducted by Professor Meera Agar and Dr Vanessa Yenson through the Faculty of Health, University of Technology Sydney. It aims to identify and understand which symptoms and side effects of cancer and its treatment have the biggest impact on everyday life for children, young people and their families.
Understanding the schooling experiences of children and adolescents diagnosed with a brain tumour
The research is being conducted by Dr Verena Pritchard at the Children’s Brain Cancer Centre in Brisbane and Queensland University of Technology.
When we list research not being conducted by Redkite, we are not recommending that you take part. We have checks in place to make sure that the research will be conducted ethically but you should make your own decision whether or not you would like to be involved.
We would also like you to know that:
- You should not feel obliged to participate in any of the studies listed here
- Your relationship with Redkite won’t be affected by whether or not you take part
- If you would like to participate, you should consider informing your doctor or health professional
- If you do decide to take part, you have the right to withdraw from the research at any time, whichever study you take part in
- Redkite has not and would never pass your details on to the researchers listed here, or any other external researchers, without your permission
