Take part in research and evaluation
Take part in research and evaluation
Our research team regularly conducts confidential surveys and evaluations with the families who access our services. Sometimes they are asked by colleagues in the cancer research sector to share their call for participants in studies or projects.

External studies seeking participants
If you have had cancer and were aged 0-18 at the time, or have cared for a child or sibling with cancer, you might be interested in taking part in a research study. Your participation could help improve support for others in the future.
Understanding the lived experience of people affected by cancer
The University of New South Wales in collaboration with the World Health Organisation (WHO) is conducting global research to understand the social, emotional and financial experience of those diagnosed with cancer, and their family members.
Inequalities in access to healthcare for childhood cancer
The research is being conducted by Dr Krishna Poudel of Western Sydney University to understand how social identities (e.g., socioeconomic status, family cultural background, and regionality) shape parent’s experiences of accessing care for their child with cancer.
Informing the design of financial interventions in paediatric cancer care
The Queensland University of Technology (QUT) is investigating the attributes of financial interventions that are important to parents/guardians caring for a child with cancer. The findings of this study will help us inform policy around how current models of care can be improved.
Understanding the schooling experiences of children and adolescents diagnosed with a brain tumour
The research is being conducted by Dr Verena Pritchard at the Children’s Brain Cancer Centre in Brisbane and Queensland University of Technology.
‘Making Moves’: a digital health education program promoting physical activity for childhood cancer survivors.
The research is being conducted by Dr Lauren Ha, post-doctoral research fellow from the Behavioural Sciences Unit, School of Clinical Medicine, University of New South Wales.
Child and adolescent cancer research priorities in Australia: An investigation of the voices of stakeholders
The research is being conducted by Gaynai De Sliva, a PhD candiate from the Queensland University of Technology in partnerhsip with Redkite and the James Lind Alliance.
Supporting parents who are caring for children with recent injury or medical conditions
The research is being conducted by Rachmania Wardhani (Student Investigator, PhD (Clinical Psych) Candidate)
Survey exploring the relationship experiences of families and
adolescents and young adults diagnosed with sarcoma.
The research is being conducted by doctorate student Maureen Tan, supervised by A/Prof
Moira O’Connor and A/Prof Georgia Halkett. from the School of Population Health, Curtin
University
When we list research not being conducted by Redkite, we are not recommending that you take part. We have checks in place to make sure that the research will be conducted ethically but you should make your own decision whether or not you would like to be involved.
We would also like you to know that:
- You should not feel obliged to participate in any of the studies listed here
- Your relationship with Redkite won’t be affected by whether or not you take part
- If you would like to participate, you should consider informing your doctor or health professional
- If you do decide to take part, you have the right to withdraw from the research at any time, whichever study you take part in
- Redkite has not and would never pass your details on to the researchers listed here, or any other external researchers, without your permission
To find out more about Research and Evaluation at Redkite, please contact our Research, Evaluation and Impact Manager on (02) 9219 4016
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