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Parents have shared some practical tips to help you stay organised while your child is on treatment.

Learn more about KiteCrew here

What is KiteCrew?

Childhood cancer is an overwhelming experience that affects every aspect of a family’s life. It’s important to remember that your family’s needs are different from other family’s needs.

Support for families of children with cancer require patience, empathy, and open communication. Remember that asking for and accepting help is not a sign of weakness, but a necessary part of managing such a challenging journey.

You may not always have the capacity to articulate your needs, so accepting specific forms of assistance can be incredibly valuable.

Parents have shared some practical tips to help you stay organised while your child is on treatment.

  • “Write everything down. Instructions from medical staff, medications given, mouth care schedule, significant medical events from the day, etc – as it is hard to be organised and on top of everything whilst processing the diagnosis.” The diary from the Red bag is great for keeping everything organised.
  • “I popped reminders for medication into my phone with an alarm. This helped me remember the medication that was due at certain times of the day.”
  • “Use a whiteboard at home for scheduled care such as mouth care or use a chalk pen on the bathroom mirror so child/carer can tick off schedule.”
  • “Study the treatment protocol and medicine list with a view of understanding the side effects and how to manage them.”
  • “Ask for a copy of the medical protocol so you can understand the treatment plan ahead.”
  • “For parents, it’s handy to keep a spare pillow and blanket in the car too as emergency can have very limited resources on offer for parents.”
  • “Have a list of therapists/clinicians for the nurses to page when you get on ward so you can check in with them each admission.”
  • “Have another person with you when in meetings with doctors and keep a folder for all chemo related paperwork.”

“Always keep the red bag packed and ready for both you and your child for unexpected hospital stays. A couple of changes of clothes, basic toiletries, snacks, a water bottle and a phone charger are all essential.”

Practical support for families whose child has cancer starts with their day-to-day tasks.

KiteCrew is a simple app that allows a family’s support network to coordinate and organise all the practical help they need. From walking the dog, school pickups or doing laundry. This app schedules daily tasks with a family’s crew of supporters making offering and accepting help simple.

It can be helpful to have one central place to keep friends and family updated. The Kite Crew app offers a chat function where you can create folders to share updates, upload photos, and store documents. This feature helps you keep all your information organized and easy to find. 

If you need support setting up KiteCrew, you can call the support line on 1800 733 548 or email support@redkite.org.au and ask a Redkite team member help you set it up.

More information about KiteCrew

What is KiteCrew?

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