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Let’s talk about sleep

Caring for a child with cancer, in hospital or at home can be challenging. Sleep is one of the things, in children and adults, which can be effected.

When your child is unwell, and especially if they are in pain, tired, frightened or worried, they feel most secure with the people they feel closest to. Going into the hospital environment and the side effects of treatment can cause a child’s sleep to become disturbed. They may have trouble falling asleep or staying asleep, which can cause significant distress.

Parents need nurturing too. All ‘giving’ and no ‘getting’ can wear you thin, and it can be tough to parent a sick or tired child if you are worn out yourself.

Although it’s natural to put your child’s needs first, that doesn’t mean you should always put your needs last. In fact, if you don’t take the time to care of yourself, you can end up feeling pretty run down, which can make it harder for you to help your child.

Even if you normally sleep well, being in hospital away from your family and home environment, as well as the stress of having an unwell child, can make it difficult to get good sleep.

Think about which of these apply to you:

  • Waking up during the night
  • Waking early in the morning and not being able to get back to sleep
  • Difficulty falling asleep
  • Poor quality or unrefreshing sleep
  • Excessive thinking or worrying in bed

“When Isaac came back home, his sleep was quite disrupted, especially in the middle of the night. I couldn’t sleep. I haven’t really been sleeping well since then because I’m always wondering if he’s okay, or if he had a temperature. I was very paranoid a lot of the time.” Marina

  • Reduce your chance of developing anxiety and depression
  • Help you remember complex medical information
  • Help with making medical decisions on your child’s behalf
  • Prevent you from feeling irritable and easily frustrated: with yourself, your child, your partner/spouse and hospital staff
  • Increase energy
  • Reduce fatigue and risk of road accidents
  • Improve martial satisfaction
  • Prevent weight gain – due to increased appetite

Periods of extreme stress or significant change (like a cancer diagnosis) can often trigger sleep difficulties. We can then get in a cycle of poor sleep.

If you are anxious, it can be very difficult to get to sleep, so you end up lying in bed worrying and because you are not sleeping, your original belief that ‘I can’t get to sleep’ is strengthened.

Environmental factors like machines beeping, people making noise and lights in the ward can also make it harder to get good sleep, in a hospital.

Fortunately, there are lots of strategies which can help reset the cycle so we can improve our sleep.

CatNap is designed for parents and carers of children with cancer who are navigating the daily challenges of caring for their child in hospital or at home. 

CatNap is a flexible, multi-component program that offers practical, evidence-based strategies for improving sleep and self-care for parents caring for a child with cancer. Developed with input from sleep psychologists, paediatric oncologists, and experienced parents, CatNap aims to provide rest and renewal when it’s needed most:

  • Personalised Sleep Strategies: Techniques for adjusting sleep habits that fit hospital or home settings
  • Relaxation and Stress Management: Methods for winding down, reducing anxiety, and promoting rest
  • Self-Care for Caregivers: Practical advice to combat burnout, improve emotional resilience, and stay energised
  • Safety and Alertness: Tips to help maintain focus and safety during high-stress periods
  • Building Long-Term Habits: Guidance for practicing consistent sleep-supportive routines that can carry over from hospital to home

CatNap offers you an invaluable set of tools to manage stress, improve your sleep quality, and care for yourself while caring for your child. By building healthier sleep routines, you’ll not only improve your own energy levels and resilience, but you’ll also be better equipped to support your child throughout their treatment journey.  

Key benefits include guidance on maintaining relaxation, minimising burnout, and help with creating a sense of calm and well-being, no matter where you are on your child’s journey.

Get instant access to CatNap through  myRedkite

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